Help with your pain

Endometriosis is much more than just brown/black spots in the pelvis that can be seen at a laparoscopy. There are many different problems that women with endometriosis suffer.

Some women will have painful periods, but be otherwise completely well. Others have a more complicated picture that can include:
- an irritable bowel (IBS)
- sharp, stabbing or burning pains
- an irritable bladder
- painful intercourse
- bad headaches or migraines
- fatigue and exhaustion
- pain moving around or sitting for a long time
- trouble sleeping

Not surprisingly, women with these problems feel worn down and miserable.

Because these problems cover several different areas of medicine, women often feel lost 'between the cracks' of healthcare. Each health practitioner they see cares for a small part of the whole picture, with variable success.

Surgery is helpful for some aspects of the pain, but can leave many women disappointed.

I hope that you will find this blog useful for your pain. Each week there will be a new topic covered, and your comments are welcome.

REMEMBER OUR FACEBOOK SITE 'PELVIC PAIN NEWS' FOR ALL THE LATEST IN PELVIC PAIN INFORMATION

With best wishes,

Dr Susan Evans, Gynecologist and Laparoscopic surgeon

Tuesday, March 4, 2014

Thanks

Thanks Vimax and Garcinia HCA for your encouraging comments.
This blog is no longer updated regularly but you can access new information at www.pelvicpainsa.com.au and with a LIKE to our Facebook site called Pelvic Pain News.
Within the next few months, (but not yet) there will be a new and much better website for the Pelvic Pain Foundation of Australia.We'll announce it on the Facebook site.

Susan Evans

Saturday, June 29, 2013

Reply to Anonymous who also has a patent foramen Ovale


Dear Anonymous, 

OK, sounds pretty clear to me and apart from the PFO, pretty common.
1. When you have pain in the pelvis, of any kind really - bowel/period/bladder - there is a reflex tightening of the pelvic muscles. Often this goes unnoticed for some time. The muscle are tighter but not painful. Then something extra happens and they go from being tight, to going into spasm sometimes, especially when you have been in one position for a long time, maybe after sex, maybe after being stretched with a bowel action passing them, or after passing urine, or getting up, or standing for a long time, or doing a lot of core strength exercise. So, when you had the new copper IUD put in, this stimulated the uterus - with reflex tightening of the already tight pelvic muscles - and you had more of the stabbing pains. The reason you can't sit straight is because it is a muscle spasm problem. 
2. Sure you have had a car accident, but most people with pelvic muscle pain have pain in the lower back too. It goes with it.
3. This type of pain doesn't show at a laparoscopy and doesn't show on ultrasound. 
4. There are 2 types of pelvic muscles - the ones across the pelvic floor that when tight can cause pain opening bowels/sitting/passing urine - and the ones on the side wall (obturator internus) which cause pain on one side and often pain into the back or front of the upper leg

I recommend:
1. That it would have been better to have a levonorgestrel (mirena iucd) than a copper one, because the copper one works for contraception but doesn't help pain. The levonorgestrel releasing one makes periods lighter and less painful once it settles
2. That you should read our book 'Endometriosis and Pelvic Pain' before you even think about having any surgery or going to a gynaecologist as there is much more in it than you will get from any professional. You can order it from www.pelvicpainsa.com.au
3. That this website has stretches you can do that can help, and a relaxation CD for pelvic muscles - look at the physiotherapy section
4. The free e-booklet has an intro to pelvic pain you can download but the book has much more detail. 
5. That you can still take norethisterone 5mg 1 daily with a PFO to try and keep periods away if you need to, as it doesn't increase clotting risk. 

You might want to read some of the other posts on this blog to start learning more about pelvic pain, not just as something you have surgery for, but in a much wider and more comprehensive way. If you only think of surgery, you will be disappointed that it can only help some things. 

Hope this helps. 

The new website at www.pelvicpainsa.com.au and facebook at Pelvic Pain News are where we will keep putting up new information. 


Best wishes,

Susan

Monday, April 9, 2012

New Facebook - Pelvic Pain News


WE ARE MOVING TO FACEBOOK!

There's always more to do for pelvic pain, and as you know, I am not always great at writing on this blog.

To keep women and girls up to date on the latest news, we now have a facebook page - Pelvic Pain News -  especially for young women and girls with pelvic pain. Maybe we'll have something on mens pelvic pain one day too :)

Phoebe our administrator will keep it up to date, and make sure you hear about new treatments, ideas, radio, interviews and information as soon as it's available. 
We'd really appreciate your help spreading the word, too. Maybe you have a sister, friend or daughter who just has such a hard time with pain. 
If you like what you see, please remember to LIKE US and SHARE US with your friends. It all helps give pelvic pain a bigger profile in our community.
The Endometriosis New Zealand video on the page is just wonderful!

Thanks heaps for your support, and tell us if you have any trouble finding it. We are just new at this.....

Susan

Friday, March 16, 2012

Great new Endometriosis New Zealand Video

Hey, the new Endometriosis New Zealand video is just wonderful.

Hope you like it.

http://www.youtube.com/watch?v=ajQ4UNiLOFw

Tuesday, March 6, 2012

New clinic for teens

Its Endometriosis Awareness Month!

This month is really exciting for us. Dr Clare Fairweather, a GP with a real passion for women's health is starting a special clinic just for teens with bad periods and pelvic pain. There are way too many girls spending days in the sick bay at school, and helping their pain early is a great way to avoid all those troubles you know too much about.
If you know any teens with pain, Clare would love to see them. They don't need a referral and will be really well cared for. 08 8363 2811 (Adelaide) to find out more.


Wednesday, November 2, 2011

Pelvic Pain on 'The Circle'

As a woman with pelvic pain, you probably know how difficult it is to have something that other people don't understand.

There is so much need for more awareness in our community

Over the next few months, pelvic pain and the new ebook will be featured in magazines and on radio to help spread the word that pelvic pain is real, important and common.

Even more exciting (and a little scary for me) will be a segment on 'The Circle' at 10 am on Channel Ten in Australia on Thursday 3rd November.

Hopefully it goes well :)


Sunday, September 25, 2011

Free Pelvic pain ebook

Dear All,

Its an exciting day for us, because our new pelvic pain ebook has been released :)

It is a 20 page PDF introduction to different types of pelvic pain, which you can download for free from our website and send to any of your friends, partners or family, so they can learn more about pelvic pain too.

If you would like to read it, just go to www.drsusanevans.com and click on the link to the ebooklet.

Best wishes and Happy Spring,

Susan